Welcome to all our latest news: media articles, seminar and conference presentations
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In the media and seminars
Should i get my DNA tested? We asked five experts
Sylvia Metcalfe took part in an article by The Conversation asking 5 experts if people should get their DNA tested. Published 22nd August 2019. Read it here.
“What Australians think and do about personal genomic testing – findings from the Genioz study”
Our lead researcher Professor Sylvia Metcalfe presented Genioz findings to the Medico-Legal Society of Victoria on the 22nd March 2019.
What do we need to know about online genetic testing?
Professor Sylvia Metcalfe and Chriselle Hickerton were interviewed by Catriona May for a University of Melbourne Pursuit article about online DNA testing. Published 23rd October, 2018. Read it here
Does big Pharma have a place in DNA testing?
Jacqueline Savard was interviewed on 2SER 107.3 about what can happen with your DNA information once you have had an online DNA test. 12th August, 2018. You can listen to it here
Monday Lunch Live
Sylvia Metcalfe Presented:
Australian's perspective of Personal Genomic testing
Findings from the Genioz study. At the Victorian Comprehensive Cancer Centre, 4th June, 2018
To accompany the Monday Lunch Live presentation, Sylvia was interviewed by Libbi Gorr on the ABC radio progam, Sundays, on the 3rd June
DNA tests - crystal ball or Pandora's box?
Have a listen to Nadia Mitsopoulis (ABC Radio Perth, Focus) in March 2018, talking about things to think about before getting a personal genomic test and who owns your DNA after a test. Professor Sylvia Metcalfe is one of the interviewees. Listen here
Chapter in 'Genes for Life', on Personal genomic testing
Professor Sylvia Metcalfe wrote a chapter for a recently published book, "Genes for Life'. March, 2018
Metcalfe SA. Personal genomic testing, in Genes for Life, Eds G Blashki and M Delatycki – Epub ahead of print, January 2018. (http://www.futureleaders.com.au/book_chapters/Genes-for-Life/Sylvia-A-Metcalfe.php).
Privacy Concerns for personal Genomic tests
Listen to one of our research Professor Brenda Wilson speaking to Dr. Norman Swan on his ABC radio program Health Report, August, 2017. Listen here
Should I sequence my genes?
Have a listen to this BBC radio 5 live science podcast. One of our co-researchers, Anna Middleton is one of the interviewees, 16th April, 2017
Update
Free Public event
Our study lead Sylvia Metcalfe is a guest on a panel:
#DNA in medicine. This is a free public event in Melbourne on Wednesday 30th November at 6.30pm.
Organised by Melbourne Genomic Health Alliance. Come along and learn about the issues
http://bit.ly/2guBIix
Who really owns your genetic information?
One of our researchers, Dr. Jacqueline Savard sits down to talk with Kelly Higgins-Devine at ABC Brisbane for Afternoons on Monday, February 6th 2017, about Who really owns your genetic information?
You can have a listen to the program here:
http://ab.co/2mEG4SZ
Australasian Science
Four of our Genioz team members contributed to this special edition of Australasian Science on Personal Genomics (July/August, 2016). See a snapshot here of the articles by Sylvia Metcalfe, Jacqueline Savard, Kathleen Gray and Ainsley Newson (also guest editorial).
The following full articles are available. Click on the title to read:
Ainsley Newson
The Age of Genomics
Ainsley Newson and David Amor Genomic Testing as a Lifetime Health Resource?
Jacqueline Savard
The Ethics of Online Genomics Tests
Sylvia Metcalfe Personal Genomics: What Do Consumers Want?
Navigating the interweb's promise to take us to our ancestors
Two of our team members, Jacqueline Savard and Ainsley Newson, contributed to this article in May 2016:
http://www.sbs.com.au/nitv/article/2016/05/06/navigating-interwebs-promise-take-us-our-ancestors
By Andrea Booth
Source: NITV
Image: Getty images
Conferences
Australasian Association of Bioethics and Health Law (AABHL), Townsville, QLD
September 24-26th. Jacqueline Savard presented:
Working with communities: engaging the public about the ethics of and decision to pursue personal genomic testing
Workshop data from 2017
Emerging Health Policy Research Conference hosted by the Menzies Centre for Health Policy at the University of Sydney
July 26th, 2018. Jacqueline Savard presented:
Working with communities: engaging the public about personal genomic testing
Workshop data from 2017
Human Genetics Society of Australasia - Annual Scientific Meeting, August, Australia 2018
Chriselle Hickerton and Jacqueline Savard presented:
Working with communities: engaging the public about the decision to pursue personal genomic testing
2017 Workshop data
Erin Tutty presented:
“A leap of faith”: Exploring personal genomic testing for nutrition and wellness in Australia
Content analysis of websites offering personal genomic testing nutrition and wellness and interview data from Genioz study
European Society of Human Genetics
Jacqueline Savard Presented:
Working with the public: 'Engaging with consumers about the ethics of and the decision to pursue personal genomic testing.'
2017 Workshop data
World Congress on Genetic Counselling
Sylvia Metcalfe presented:
Personal Genomic Testing
All four stages of data collection from 2015 - 2017: Focus groups, Survey, Interviews, Deliberative workshops (public forums)
Australian Science Communicators National Conference 2017
Bronwyn Terrill presented:
'The more I know about genetics...' using research to inform language and approaches to genetics and genomics education with the Australian public
Human Genetics Society of Australasia - Annual Scientific Meeting, Australia 2016
Chriselle Hickerton presented:
Perceptions of authenticity and trust:
Information-seeking about personal genomics by the Australian public
2015 Focus group data
13th World Congress of Bioethics, Scotland 2016
Ainsley Newson presented:
No risk, no worries?
An empirical and ethical investigation into Australians' attitudes towards personal genomics.
2015 Focus group data
The European Society of Human Genetics Conference, Barcelona 2016
Sylvia Metcalfe presented:
Exploring Australian public knowledge and understanding of genetic concepts and terminology in the era of personal genomics
2015 Focus group data
The International Congress of Human Genetics, Japan 2016
Bronwyn Terrill presented:
Exploring Australian public knowledge and understanding of DNA, genes and genetic testing in the era of personal genomics
2015 Focus group data